Blog

What Is the Bronchiectasis and NTM Care Center Network?

This blog post was authored by Lucinda Shore and reviewed by the Bronchiectasis and NTM Content Review and Evaluation Committee.As bronchiectasis and nontuberculous mycobacterial (NTM) lung disease become more common in the U.S., getting a quick, accurate diagnosis and expert care is very important. To help meet this need, the Bronchiectasis and NTM Association created the Bronchiectasis and NTM Care Center Network (CCN).The CCN connects people to medical centers throughout the U.S. that provide expert care and treatment, high-quality education, advice, and support for those living with bronchiectasis and NTM lung disease. The CCN gives sites one of two designations:Care Center: These centers offer a clinical research program, treat hundreds of people with bronchiectasis and NTM, and provide direct access to specialists (like dietitians or psychologists) for immediate care.Clinical Associate Center (CAC): CACs provide high-quality, expert care, but may see fewer people with both conditions, may be less involved in research, and may not have access to specialists within the center.

Press Release

Bronchiectasis and NTM Association announces collaboration with Insmed on first-in-disease observational study evaluating real-world effectiveness of brensocatib in non-CF bronchiectasis

The Bronchiectasis and NTM Association today announced a collaboration with Insmed Incorporated, on a multicenter, prospective study designed to evaluate the real-world effectiveness, safety, and tolerability of brensocatib in adult patients with non-cystic fibrosis (non-CF) bronchiectasis.

Discussion

Infection Control Precautions at Doctor’s Offices

How do YOU protect your lungs at the doctor’s office?Going to the doctor is important—but for those living with Bronchiectasis and/or NTM, sitting in a crowded waiting room with people who are coughing can feel a little stressful. So let’s learn from each other! What infection-control precautions do YOU take when visiting a doctor’s office?Do you… 😷 Wear an N95 or KN95?🚗 Wait in your car until the exam room is ready? 🕐 Try to schedule the first appointment of the day? 🪑 Look for a less-crowded area of the waiting room? 🧴 Carry hand sanitizer?Open doors with a paper towel or other protective cloth? Use a paper towel to push the elevator button? Do airway clearance immediately after the office visit? 📞 Ask the office about their procedures for patients with respiratory symptoms? 🤔 Or do you have another strategy that helps you feel safer?Do you feel comfortable asking a doctor’s office to help reduce your exposure to respiratory infections—or do you worry about being perceived as “difficult”?Please your experience below. What works for YOU might be exactly the tip another member of our community needs. Thank you in advance for sharing your experiences. 😍